Caregivers for Disabled Adults

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Making the decision to care for a disabled adult is a life altering resolution to an already difficult situation. Weather a sibling or non-family member, the decision to come to be a caregiver for a disabled adult means change. Once, a mother of a disabled child once said it was like learning to live in Holland. In a lot of ways, her comparison was valid. As the parent of a disabled child you learn a new language and how to live in a wholly new environment with a new focus in life. Every choice made reflects “what’s best for my child”.

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When you make the decision to accept responsibility for a disabled adult, it mirrors many of the same issues. The only issue is, the inroads made over a lifetime of care giving by parents are not automatically transferred to the new care giver. State, county, and local contacts for aid programs are seldom passed along. Dealing with waiver and reserve programs can be confusing and at times, a gauntlet most habitancy find impossible to manage. That said, if a caregiver you must be, then first face some facts. You’re inspiring to Holland and your life is changing.

My feel is in Texas and that said, I will refer to state specific issues. Each state will have similar initiatives; some will contribute great programs, while other states will offer little in supported services. First do an Internet crusade of state services.

http://www.ssa.gov/

[http://www.dars.state.tx.us/]

http://www.thearc.org/NetCommunity/Page.aspx?&pid=1400&srcid=183

http://www.hhsc.state.tx.us/Medicaid/contacts.html

[http://www.workforcelink.com/html/txrehab.asp]

http://www.acf.hhs.gov/programs/pcpid/index.html

Use your state as the source and crusade for disability services. In the crusade motor text choice use words; “Your county” Your State” Disability, Rehabilitation, Services. Then Search. If disabled, most adults qualify for communal security wage (Ssi). It’s not much aid financially, but with it the disabled adult qualifies for Medicaid. That covers some financial aid and curative insurance. That’s basics but we all know, that’s not the greatest goal.

This is the time to get real investigative. As you well know, individuals with a disability have varying developmental levels. You’ve stepped up to the plate, so realistically, where do You want to go from here. More is great when it comes to independence but all the time keep in mind each person’s limitations. For this article, I’m assuming there is a degree of independence possible. Self care and communicative skills are required to move beyond custodial care and into the world of community integration. All things considered, you must be the judge of the disabled person’s capability to learn job skills and integrate socially. Training time is not important. Weather it takes a week or a month, learning a skill is the key. Rule of thumb, if a disabled person can keep the house, his room and bathroom clean, than he can be a dining room attendant at a fast food restaurant. If the disabled person conducts themselves appropriately in communal settings, they’re ready for community integration.

Find a program. Make calls. Don’t stop reaching out. The Internet is the best possible crusade tool. Don’t stop until you find a program that fits your disabled adult’s needs.

Persistence is important. Sign up for every qualifying program, don’t stop calling until it’s active and finally and important keep good records. Use an increasing file folder, make a file briefcase for each program, save correspondence, make copies of letters and forms you send out and keep notes on every verbal and telephone conversation.

It’s hard to fantasize administrators of programs could perhaps be selective in application of policies but it happens all the time. If a program has a waiting list, ask the estimate on the list. Call back every few months and make person contribute a status. Get names. Be able to tell the next person the history on a field including dates and who you spoke with.

Last but by all means; of course not least. Join a reserve group. connection of Retarded Citizens (Arc) is a national organization. The Arc has communal events for the disabled, caregiver training and state government inter-action and advocacy programs.

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